Self-Management Education for Childhood Cancer Survivors

GroupTexting-resize-iStock_000053131652_MediumProject Title: Integrating Self-Management Education with Cancer Survivorship Care (SIP #15-001)

Principal Investigators: Christine Hill-Kayser (UPenn) and Lisa Schwartz (CHOP Subcontract)

Co-Investigators: Lamia Barakat, Lauren Daniel, Linda Fleisher, Jill Ginsberg, Wendy Hobby, Linda Jacobs, Yimei Li, Dava Szalda

Project Dates: 2015-2018

Adolescent and young adult (AYA) survivors of childhood cancer represent a growing and underserved population (1 in 600 young adults is a childhood cancer survivor) at risk for cancer recurrence, second cancers and other chronic health conditions (so-called “late effects”) of cancer treatment despite the vast resources used to cure them. AYA also demonstrate disengagement and loss to follow-up, health-harming behaviors, and deficits in knowledge about their cancer history and future risks. We will test the impact of AYA STEPS (Self-management via Texting, Education and Plans for Survivorship)–an innovative, technology-based intervention that will provide customized care plans and a tailored mobile health application to enhance survivorship self-management.